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Archive for the ‘Aspergers’ Category

I *finally* got smart and found an android app for blogging! <hits forehead> Duh…

Anyhow, I’m here…quick update summary and more catching up to follow:

* FINALLY found a new job and love it

* don’t like my manager so much

* still trying to catch up on bills etc

* Trace is having medication issues (add/adhd combined inattentive-hyperactive type) as in, they don’t seem to be working as well

* Landon is 4 yrs old now…some behavior issues but most likely nothing not typical for his age…speech is improving by leaps and bounds!

I *think* everything else is status quo….

*Love* my new blogging app!!

Location : 800-898 Tepee Dr, Independence, MO 64056,

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Yes, it’s been a long while since I’ve posted. Honestly, I’ve just got so much …. stuff…. going thru my head that I don’t even know which way is up sometimes. Between IEP’s and IEE’s and speech therapy for Landon and trying to find a job….well, ready to pull my hair would be putting it lightly.

The IEE (independent educational evaluation) is done. The dr was fantastic, did a very thorough job and was right on the money about Trace. Aspergers is confirmed, ADD/ADHD combined type, dysgraphia and dyscalculia…everything that we already knew, plus a couple of new ones (dysgraphia and dyscalculia).

The scores on the tests done by the district as compared to the dr’s scores….extreme differences. On the Woodcock Johnson III, from the dr’s evaluations: on the Written Expression, Writing Fluency and Writing Samples, he scored as well as 1% of his peers. 1% !?! Math Fluency was less than 4%. Broad Written Language less than 6%. Including the ones I just listed, he scored under 50% on *11* of the tests….only 5 tests scored above 50%. On these percentile scores, 50% is pretty much average…anything below 50%, less than average, anything above 50%, above average. With the school’s evaluation, the count was exactly the opposite… 5 tests were below 50%, 11 above…go figure. On the Wechsler Intelligence Scale there were such drastic differences that I wondered if they’d even tested the same child!!! His full scale IQ had a 23 point difference….that’s huge. Also, something that I didn’t know at the time but was later noted and confirmed by several people (including our family psychologist who’s been in practice 40+ years) …when the school did the WISC with Trace….on 9 of the subtests administered, he scored exactly the same score….exactly the same. Our family psychologist said that in all his years of practice, he’s never seen that happen on one child’s test. Again, the differences between what the school scored and what the IEE psychologist found, drastic differences. Just as an example….. on the Comprehension subtest, the school scored him at 75%, the IEE found him at 9% – from above average to doing no better than 9% of his peers?!? Another drastic example, on the Letter Number Sequencing subtest…school scored (another) 75%, while the IEE found him to be at 0.4%.

Anyhow, we had our IEP meeting last Thursday. 2 hrs it lasted and….for the most part, it was a complete waste of time. The school part of team, when I brought up his low % scores on the IEE, says “oh, he was probably just having a bad day.” or “You know, his testing was done after school, when his medication had worn off. He was probably fatigued.” I can understand that he could be a bit tired after school….however, that being said, several things immediately come to mind- 1) the IEE psychologist would NOT have continued testing if she didn’t think he’d been up to it. She would have rescheduled. and 2) even if he *was* fatigued, the differences in the scores would NOT have been that drastic, a few % points, sure……the ones that I put up above…not even maybe.

On the plus side, he will continue with 60 minutes of speech therapy per week, and 30 minutes of occupational therapy per week (plus in the regular ed classroom guidance and redirection assistance). On the negative side….really nothing else was addressed, or was brushed off if I brought it up.

Why does this have to be so difficult? Why do we parents have to fight so damned hard for something that shouldn’t have to be fought for at all? And, what about the parents that don’t have the resources that we’ve been blessed enough to have? A wonderful family psychologist, an awesome mentor/advocate, supportive family….all this, and we’re still having issues. Parents that don’t have any of that, what chance do their kids have if the schools try to shirk their jobs?

I’m too tired and too stressed to even try typing anymore tonight….I can’t wrap my brain around even 1/4 of this stuff, much less 100% of it which is what my boy needs from me.

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Once again, life has been happening at breakneck speed and blogging fell to the wayside. Time to catch up.

To start, one teeny-tiny little tidbit I forgot to mention when I last posted… I lost my job. Well, technically…*I* didn’t lose it, it lost me. They eliminated my position…I went in to work one morning, just a normal workday morning and 45 minutes later, my desk was packed and I was walked to my car. I felt like I’d done something wrong, something criminal the way I was escorted out and I was watched over while packing up my desk. I understand the reasoning behind it, but that doesn’t change how it makes you feel. So. There, that’s out. I’ve been looking for something new, but like millions of others in this nation of ours, it just isn’t happening. I’m either not qualified enough, or I’m over-qualified. That last one is a crock but, there’s not anything I can do about it.

Yesterday, we discovered that Randy’s work van had been broken into. That’s the 2nd time in the last 6 months….we don’t live in a “bad” neighborhood by any means…it’s a decent, middle income place. However, a few streets over are low income duplexes, full of punk ass teens who apparently needed a quick drug fix. Or something. Randy was off for 5 days over the holiday and using some PTO time so he hadn’t been in his van since last Wednesday night. He went out yesterday afternoon so he could repair something and discovered-and this is good, very inventive- that the punks had cut the rubber around the drivers side small wing window and taken the whole damn wing window out. Matter of fact, they took the fricking window itself…along with the new GPS unit (which was hidden in the glove box), a small heater, a “back up” camera and the LCD screen that went with it (so the guys can watch what they’re backing up to and not run into buildings) and some various tools. The thing is…this was no quicky, smash ‘n grab job like last time. Like I said, they actually took the window out as opposed to smashing it, they had to unscrew the backup camera from the back top of the truck (above the tommy lift) and dismantle the LCD screen to make sure they didn’t damage it. And, it had to of been done in broad daylight. We put up a bright ass motion sensor security light after the first time his van was broken into-it’s right outside our bedroom window and wakes us up if it comes on, also visible from the living room (thru the backdoor that goes onto the deck). So, that leaves daytime….again. Just like the first time. There were actually prints on the window this time so they dusted the window and the doors, above the tommy lift etc….not expecting anything to come from it though. AND, because this has happened twice…the guys are not allowed to drive the work vans home anymore, for any reason. We live approximately an hour away from his workplace (therefore, the vans) so if he’s on call, he has to drive all the way to the depot and get a van, then go wherever the call is….in the mornings, even if the first call is 10 minutes from the house, still he’s got to go get a van and backtrack.

Not to mention what this is going to cost in gas money now. Admittedly, we’ve been spoiled in that we’ve only had to worry about gas for my car for the last 2 years. However, after figuring it out today….the amount he’ll be putting in his gas tank every month will be equivalent to what we were paying in child care when I was working. I can’t figure that we’ll be able to afford both….so, unless I get an evening job (which would still be difficult as he’s on call every other week) there’s no way we can think of at the moment where we’d be able to afford child care AND his gas costs…so, perhaps I’ll be staying home indefinitely? I don’t know….Any ideas anyone?

I could always go back to school. For the unemployed there is grant money set aside that can be used while you’re drawing unemployment. I know that alot of jobs that I am qualified to to do (without a degree) are now requiring a bachelors degree or something of that nature. Maybe I should go to school, get a degree so I can be “officially” qualified for the jobs that are out there? Hell, I don’t know… Any thoughts on that??

AND….because things just aren’t varied and busy enough…we requested and got permission for an independent educational evaluation at public expense for Trace. The district didn’t much like it but, then, I didn’t much care for the fact that they are wanting to discontinue his OT services and not address his adaptive behaviors at all. We had our initial assessment appt last night…two hours long, mostly us and the dr talking and then all of us plus Trace towards the end. We all, including Trace, really like Dr. O….she’s a really nice lady. Seems to be very thorough in her work and comes highly recommended. For the next 4-5 weeks, 2 hrs a week will be spent testing and evaluating Trace in all areas related to his disabilities. I think that we are going to be very pleased with her results, but I’m thinking the school won’t be so much. Which is a sad testimony to how far off track our schools have gotten. I know it’s not necessarily the schools, or the teachers (altho, in our case I’m not so certain about that)…but it’s the laws. State laws, and district procedures….they are supposed to follow IDEA 2004 guidelines, the state laws are supposed to ensure that, and the districts are supposed to implement it. But, who’s watching to make sure it’s done right? No one. There’s no checks ‘n balances …at least not in Missouri. Advisory panels aren’t compiled of the people they are supposed to be, parents are shot down all the time if they speak up at meetings…”that’s not the way we do things” ….Um, if federal law states it is the way you’re supposed to do things, then you’d damn well better be doing it. It’s absolutely ridiculous the way that schools and districts find loopholes to get away with things, or just blatantly ignore things. It’s an absolute shame. I thought that the schools are there to teach the children. Period. That the education comes first. Why is that not happening? When, and why, did it become about not wanting to be bothered with more paperwork, or more work in and of itself? About not putting the child’s needs first? I know that it’s not just state laws that are inefficient, but at the federal level too….when are they going to make it about the kids again?

As parents, we need to put a stop to the intimidation that goes on at IEP meetings when the district side of the team wants things their way. We have to speak up and advocate for our kids…no one else is going to do it. We have to work at changing the laws, at holding the lawmakers accountable to do their dang jobs.

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LOL….sorry for the squeeing, I never expected to win any kind of blogging award! I need to apologize first and foremost for taking so long to respond to this!

Laura, I’m humbled and thrilled that you thought of me, thank you! You all need to check her out at iamtheglue I think you’re quite an amazing person….what with having a newly dx’d kiddo on the spectrum (and plunging head-first into all the reading and researching and googling that goes with it) and spear-heading the pilot Autism Ambassadors group for Derek’s school; you also work a FT job that has been stressing you out, suffer physical pains every single day…. you ALSO are an incredible mom to *7* children (shoot me now, gah….I don’t know how you do it!). I am tired just *typing* all those things out….and I’m quite sure I didn’t hit everything (like, oh, I don’t know…cleaning the house? Taking care of hubby? Doing laundry? Etc etc).

Now! It is my turn and here are the rules…
• You must thank the person who has given you the award.
• Copy the logo and place it on your blog.
• Link to the person who has nominated you for the award.
• Name 7 things about yourself that people might find interesting.
• Nominate 7 other Kreativ Bloggers.
• Post links to the 7 blogs you nominate.
• Leave a comment on each of the blogs to let them know they have been nominated.

Seven things about me that are interesting…well, at least seven things about me, lol

1. I crochet to help relieve stress and unwind.
2. I love love love reading!
3. I volunteer with a dog rescue, breed specific Small Paws
4. I absolutely loathe doing laundry
5. I have a secret obsession- I love Kid Rock’s music!
6. I am awful at Mafia Wars on Facebook.
7. I have enough yarn that my husband says I should open my own yarn shop

Seven amazing bloggers that I want everyone of you to go and visit-

Amalah
I don’t remember exactly when or how I came across Amy’s blog, but I *can* tell you that it’s been a mainstay on my list of “must-read” blogs, lol. She is incredibly gifted -She’s funny and serious, snarky and sympathetic, all the while not afraid to say it like it is. She’s got 2 gorgeous boys and shares pictures of them all the time. She’s fun to read, she can (and will at any given time) make you laugh, cry and/or say “Exactly!” or “Whoa, been there, done that-not fun”. I’ma shut up now, go read Ms. Amy!

Yarn-A-Go-Go
Rachel is a truly remarkable woman. She’s a knitter (which is how I got “hooked” on her blog-sorry, couldn’t resist the pun!), she’s a writer (her first book comes out April of 2010…watch for it!) and lives in sunny California. She’s got mad skillz in her knitting (she makes gorgeous sweaters), and her writing is fantastic.

The Kerrie Show
What to say about Kerri….wow. What *not* to say? Kerrie and I go waayyyy back, lol, clear back to high school (20 yrs this year! YIKES!). We recently reconnected thru Facebook and I’ve been reading her blog since! She’s an awesome homeschooling mom of 4, with another on the way! She’s also a writer, she’s got an e-book out there, as well as lots of parenting articles!

Motherhood (Oh, And Everything In Between)
I just recently started reading Danielle’s blog after “meeting” her (online) thru a mutual friend we have. She took the time to indulge me in a question re: special needs kids and teachers. Danielle is a stay-at-home mom of 3, 2 boys and 1 girl. Her blogs run the gamut of topics….I especially love reading about the antics of her kiddos!

Mariposa Farm Alpacas
Have you ever seen an Alpaca?? The owner of this blog is my cousin Deborah, we grew up spending parts of our summers together and I love her to pieces! She’s an alpaca owner as well as a research scientist; she dances (and teaches dance), she sings and volunteers at her local zoo, she “tweets” and is active on Facebook as well. I don’t know that there’s anything that she *doesn’t* do, lol. Give her a read, check out her Alpacas!

Fiona’s Blog
Ahhhh….Fiona. Fiona is the daughter of another cousin of mine (Hi Aimee!). There’s not tons of writing on Fi’s blog, but whenever you need a “pick-me-up” you will always find beautiful pictures of Miss Fi! Her mama,Aimee, is also my cousin Deborah’s sister- keepin’ it in the family 😉

My Life with Aspergers
This is a blog that I’ve learned so much from. The keeper of this blog is John Elder Robison- also author of “Look Me In The Eye: My Life With Asperger’s”. I’ve only recently started reading it, going back to the beginning, and it’s helped me to understand so much about Aspergers. His blogs have taught me how to look at situations from the POV of someone who has Aspergers and challenges me to search out alternative solutions that I encounter with my oldest.

Holy Moly…. I am truly tapped out right now! I hope you all enjoy the blogs that I’ve linked too 🙂

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The Gift of Aspergers Syndrome

I normally don’t pay much attention to movie reviews. However, with the movie “Adam” coming out, I’ve been reading some of them here and there, eager to see what others think of the disorder that I deal with daily in my almost 11 yr old son. And then I read this review of the movie by Mr. Rex Reed.

http://www.observer.com/2009/movies/hugh-dancy-his-way-superstardom

I honestly didn’t think my dropped jaw would be able to make it back up from the floor. I was shocked, upset, indignant, sad….goodness I can’t even begin to list all the things that went through my mind. But the one thing that stuck there after reading it was……people are going to read this and get completely wrong ideas about people with Asperger’s Syndrome, they will think that Mr. Reed knows what he’s talking about…but, outside his circle of two Aspies, he clearly, *very* clearly, doesn’t.

This is the paragraph that I wished he would have researched before he’d written it; talked to doctors, psychologists, psychiatrists….even….I know it’s a stretch here but….maybe even talked with some Aspies (besides the two he knows)? Hugh Dancy, who portrays Adam (and does so very well), will tell you “no two persons with Aspergers are the same”….

Far from just another exotic Disease of the Week, Asperger’s is an incurable neurological disorder similar to autism that turns outwardly normal-looking people into high-class idiot savants. I know at least two people with Asperger’s. They are incapable of thinking of anyone or anything outside of themselves. Challenged by social interactions and given to obsessive routines that revolve around a single subject of interest, they do not like to be touched, they feel incapable of explaining things and they cannot cope with people in general. Emotionally blocked, they say things that hurt and sting without meaning to be rude, and are weak at understanding, receiving or exchanging the emotions of others. They cannot look you in the eye. Adam is a fascinating study of a rare affliction in which all of these qualities are evident, in carefully researched scenes that are humorous and touching. It is lethal to get involved romantically with any person with Asperger’s syndrome, since they care nothing about other people’s feelings, needs or priorities

I read that and just shake my head. Apparently he has had some bad experiences with the Aspies he knows. Unfortunately, there are people who will read his words and take it to mean that all Aspies are that way and that couldn’t be further from the truth. Perhaps the two that he knows (and I’m willing to bet he knows more and just doesn’t realize it) are exactly as he describes, but to paint all Aspies with the same brush does them a huge disservice.

Please know that I am writing this to be specific to Aspergers Syndrome (AS). I realize that while Autism and Aspergers are included on the same “spectrum” there is a world of difference between the two. I’m not an “expert” on either of them by any means…only on my own child who happens to have Aspergers.

To tell you what I mean by “spectrum” I’ve copied and pasted the following from the website of NINDS (National Institute of Neurological Disorders and Stroke):

AS is an autism spectrum disorder (ASD), one of a distinct group of neurological conditions characterized by a greater or lesser degree of impairment in language and communication skills, as well as repetitive or restrictive patterns of thought and behavior. Other ASDs include: classic autism, Rett syndrome, childhood disintegrative disorder, and pervasive developmental disorder not otherwise specified (usually referred to as PDD-NOS)

There are no two Aspies who are the same, there just isn’t. There are characteristics of the disorder which you will find in one Aspie, but not another. And characteristics that you find in one won’t even be a blip on the radar for another. Not to mention, the degrees of severity of the characteristics are different for each Aspie as well. My son Trace is almost 11 yrs old and he has Aspergers. However, he is not even remotely like the description that Mr. Reed gives us in his review. Trace is intelligent, yes (in the top 5% of his 4th grade class last year) but not a “high-class idiot savant”. He is a loving, sweet, funny and caring child…..especially with family. He has a few friends and their interests tend to run to the same activity which, right now, is Pokémon….especially the cards, but he also likes Transformers and Star Wars. He loves hugs and to be hugged, or sitting next to us or playing with his little brother. Trace has no problem explaining things….unless it’s something he doesn’t know and then he will ask. He is honest, almost painfully so…but, I’d rather he tells the truth than lie. And he is not emotionally blocked- he loves, he hurts, he cares. He will look you in the eye. To say that it is “lethal” to get romantically involved with an Aspie….well, it’s apparent that it’s written by someone who is misinformed about Aspergers and those who have it. Trace may have certain things to learn and issues to deal with so he can be in a successful relationship…but, you know what? That sounds pretty typical relationship to me….and with the right person, you work together to help the relationship survive.

Almost without exception, they leave you perplexed, riddled with doubt and totally depressed

Ah, the last sentence. Does Trace perplex us? Sure….but, show me a child/person (with a disability or without) that *doesn’t* perplex their parents/family/friends sometimes. I will admit to the “being riddled with doubt” point. I absolutely doubted myself when Trace was first diagnosed with Aspergers. I doubted that I could be the parent that I needed to be for him because…”hey, it took me (us) *10 yrs* to find out what was wrong with our son.” ….and “hey, there’s a TON of research that needs to be done and dr’s and specialists to find and therapies to research, and IEP’s to be fought for and teachers to talk to and the educating of family/friends/John Q Public and laws that need to be in place but aren’t so they need to lobbied for and more research to be done and advocating to do….and …and …. and….and….” Depressed, oh yes….even prone to panic attacks. I was overwhelmed with the diagnosis, by all the “things” that needed to be done, all the things that I need(ed) to learn.

But, see, one thing I’ve learned over the last year and three months is this. There will always be research to be done, advocating to be done, learning to do, laws that need changing or needing to be put in place. The medical community is learning more and more each day about Aspergers. They are learning about the causes and the things that will help our kids- so they can learn to cope, learn to be (at least somewhat) comfortable in social situations, and learn to recognize what emotion is playing across the face of the person they’re talking to. And as we learn more about this disorder, the less I doubt myself.

I realize now that while I may have “off” days (and who doesn’t?) I am totally and completely blessed with this child of mine. Yes, Trace will always have Asperger’s Syndrome, it *is* incurable (guess Mr. Reed did get one thing right), he will always be more than average intelligent. He will probably not ever be totally comfortable in social situations (but neither are a lot of people I know who are neurotypical or, NT’s) but will learn to be more so than he is now because we have researched and sought out the help that he needs. He has the ability to focus and learn everything there is to know about whatever subject/topic that has caught his attention…and as that is subject to change every year or so, I expect that he will learn so much more than the average person. He will always hug me and accept hugs from those that he cares about.

Most importantly, he is, and always will be, my quirky “Little Professor” who is intense in his focus on certain things, who pals around with his little brother, who won’t always get the idioms that we utter, who will read and re-read books that he loves, who may say something “politically incorrect” but still be 100% honest, who may always include an awkward little pat on the back when he hugs, who may not always express his emotions outwardly, or understand the emotions playing out in front of him, who probably won’t look you in the eye for more than 2 seconds at a time because it’s just “too much”, who may never take a picture where there is no light in his eyes and the smile isn’t forced, who will never (by his own admission “Mom, I don’t *do* spontaneous”) do anything spontaneously and will always get so intensely focused on his Nintendo DS game that he won’t hear you call his name when you’re right next to him….but he will always, without fail, tell me “I love you MORE” when I tell him that I love him.

You have no idea what it means to be gifted with Aspergers Syndrome.

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What can I say? Life is busy….work is busier than life. It makes my head spin. But, I’ve found some new blogs to follow and I really just need to stop being lazy! I can post from my cell phone so really, no excuse.

A brief rundown…. Bubby started the 5th grade. It’s in a different building that the elementary grades so we were afraid it would be a hard transition for him. Apparently not. At the back to school night 2 weeks ago, we were amazed at the things his teachers were telling us. You may (or may not) remember me talking about how at recess time Bubby would walk around the playground, picking up rocks or junk or trash, all by himself because he didn’t know how to approach the other kids to ask to play. This year, 2 weeks into it, and he’s got 2-3 boys that he plays with at recess (!!!) and sits with at lunch (!!!!) and in general, calls “his buds”. Be still my heart. I never, ever, thought I’d hear this about him. Don’t misunderstand me, he’s still my Aspie (and always will be, there’s no “cure” for AS) but, in some situations, he apparently can feel comfortable enough to initiate contact with a couple of his peers. And though we can’t prove it, we believe that the equine therapy he’s been doing over the summer has played a large part in that. He’s been doing a program called H.O.R.S.E. (Helping Others Reach Success and Excellence), you can visit them at http://www.horsehelpspeople.org and we’ve seen some changes in him, good ones. If you’d asked me at the beginning of summer if I thought this therapy would help, I probably would have been iffy with my response. But, he went from never having been around anything larger than a Rottweiler, to actually *RIDING* the horse just last week. Color me surprised. And ecstatic!

On to Lil Man….ahhh….Lil Man. He’s 3 and a half now, with an attitude of a hormonal teenager. One minute he’s giving us kisses and in the next breath screaming at us for something. Or from sitting quietly next to the dog, and the next smacking them…he’s gotten himself snapped at recently for doing just that. He’s talking up a storm….though you can only understand about half of it. Speech therapy will be starting in the next few weeks (thru the school district’s early childhood center)…he’s excited about going to “school”. I’m beginning to see early signs of ….well, *something*….and probably something on the spectrum, I just don’t know what….it’ll show itself eventually and we’ll deal with it then I suppose.

A few weeks ago, I wrote a paper (an essay? a letter??) on Aspergers. It was mainly in response to a poor review of the movie, “Adam”. Hugh Dancy is the titular character, a 20-something man with Aspergers who falls for his new neighbor (played by Rose Byrne). The movie had, up to that point when I read this one review, gotten nothing but glowing reviews and praise ….not only from NT’s but from the ASD community-and at times, that can be hard to get. I’m going to share my “paper” with you in a new post shortly.

Hey, looky there….you get 2 posts in one d….wha? What do you mean that doesn’t make up for all the unposted months?? Hmmph….fine. I’ll post it anyways 😉

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So…..what do you do when your spouse doesn’t GET the issues that your oldest child, who happens to be an Aspie, has??? I mean, c’mon….seriously. I *know* that it’s been difficult to deal with….I *know* that it’s hard to understand….but, damnit, we HAVE to deal with it correctly or there’s going to be bigger issues down the road.

We got Bubby a Nerf “protecter” for his Nintendo DS….much needed, especially since Lil Man likes to grab things from your hands and throw them….down the steps. Yeah. So, got the protector, put it on the DS and after spending about 10 minutes with it on, Bubby wants to know can he take it off….he doesn’t like the way it feels on his hands. Duh. It didn’t even occur to me (us) that he may have sensory issues with it…..he’s particular about what he feels on his skin….and he doesn’t like “rough” feeling stuff-no one does but what’s “rough” for him isn’t necessarily rough for someone without sensory issues. So, when he came to us and asked if he could take the DS out of the protector as long as he wasn’t up and walking around because it “feels funny” ….well, I didn’t really think it was a big deal. But nope, Randy had a fit over it. And when I told him that it’s likely a sensory issue and we should give him time to adjust to it. He said he (Bubby) needs to keep the damn DS in the protector and just adjust. *scoffs* Because it’s just easy peasy pudding pie for Bubby to “adjust”, right? He still doesn’t like to feel a shirt’s cuff seam on his wrist…..but now, about 5 yrs later, at least he’s not still tearing holes in the sleeves so he doesn’t have to wear them anymore. Or, what about the seams on socks? It’s pretty dang hard to find seamless socks let me tell ya, but I do it because it just bugs him so much. Any kind of ribbed or textured shirt? Not getting worn by Bubby….it’s either “itchy” or just plain ole “I don’t like how it feels Mooooommmm”. So, am I going to force him to use the protector all the time? Heck no……as long as he’s sitting down I don’t see that he needs to keep it in the protector…..but if he’s up and about? Yes, he’ll need to have it on.

Last week we had a pretty special night….. Thursday night they had an awards presentation at Bubby’s school for kids who scored “Proficient” or “Advanced” in Communication Arts and Math. He got medals and certificates for “Proficiency” in both subjects! We are soooo PROUD of him! He told us after the presentation that he wants to get “Advanced” next year and I was like “Wow! He’s got some high goals for himself” …..which he promptly shot down when he finished his announcement with “because the Advanced medals have way cooler pictures on them Mom!” LOL……

In other school news……Bubby has completed most of his IEP goals. One or two of them he’s having issues with, but, his speech therapist/case manager says that she expected it because the curriculm is getting more difficult. He’s still got all A’s and B’s on his report card so I’m pleased…..but, am accepting right now that the IEP will have to be redrafted for his move to 5th grade this fall. Hopefully I’m better able and equipped to deal with all the meetings and such this time around…..last time I was a nervous wreck and had major panic attacks. However, we’ll be dealing with the same people-with the exception of his teacher of course- so I expect that it will be somewhat easier on me.

Now I’m off to dig up info to share with Randy about sensory issues and Aspergers and ADHD…..wheeeee!!

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